The ICD Participant Pool is a central database for research labs in ICD. Researchers use the database to contact local families about taking part in studies.
Agreeing to be in the participant pool only means that researchers may call or email your family. It doesn’t mean that you're agreeing to participate in any study.
After you register your child, we’ll put his or her name on a large list of children whose families expressed interest in participating in studies. When a new study begins, a researcher will ask for a list of children of a particular age. If your child falls into that age group, we’ll give the researcher your phone number and email address, so they can contact you. The researcher will contact you, describe the study in greater detail, and ask you if you’re interested in participating. You can request to be removed from the pool at any time by contacting ipp@umn.edu or 612-301-6639.
Each study is different. Some studies are phone or mail surveys that you can do from home. Other studies send researchers to schools or homes. It's most common for researchers to ask families to visit the University of Minnesota-Twin Cities campus. Compensation depends on the particular study. Researchers will discuss compensation when they contact you.